Masto Lists

the email discussion lists about mastocytosis

how to subscribe

info about the usage of the lists

the lists' archives

any questions?

Welcome to the information page about the email discussion lists for mastocytosis patients and their caregivers. This page is primarily meant as a reference for list members. Mastocytosis is a proliferation of mast cells in the skin and often in organs throughout the body.

How to subscribe (or change your preferences, or unsubscribe)

There are four lists you can subscribe to (or unsubscribe from) via these web pages:

Alternatively, you can subscribe by sending the message
SUBSCRIBE listname first_name surname
to listserv@nic.surfnet.nl. (use UNSUBSCRIBE to unsubscribe, obviously)

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I want to send a message to a list.

For masto-med, masto-com, masto-child and masto-nl the following rules apply:

For masto-med (the medical list) these additional rules apply:

(If you break a rule by accident: don't worry. If you break the rules repeatedly, your account will be set to REVIEW, meaning your messages will be screened before being sent to the list.)

To send a message to all list members, use the address listname@nic.surfnet.nl (only list members can send messages to the list):

I want to leave the list.

To unsubscribe, go to the appropriate page:

Alternatively, send the message unsub listname to listserv@nic.surfnet.nl (not to the list itself).

Help, there are too many messages!

There are two ways to reduce the daily number of messages.

I'll be off-line for some time.

If you will not be able to read your email for some time, send the message set listname nomail to listserv@nic.surfnet.nl (not to the list itself). To undo this, send the message set listname mail to the same address.

I want to know who all those list members are.

To get the list of all list members, send the message review listname to listserv@nic.surfnet.nl (not to masto@...).

I want to know it all!

If you want to know the other possibilities the listserv offers, send the message help to listserv@nic.surfnet.nl (not to masto@...) for a short introduction (2 kB). You can also visit LSOFT's site for information in several formats.

The Lighter Side of the Lists

What do those strange character sequences mean?

There is no way to put any intonation in what you write, while in speech the intonation indicates irony or stresses your good intentions. That means that you must (a) be very careful with anything you write and (b) be very careful with your interpretation of texts written by others. That is also why smileys were invented: little icons that show the intention of the text:
:-) The 'happy face', used to indicate happiness or 'no ill will'. Tilt your head to the left to understand why. The short form is :)
:-( The 'angry face'.
;-) A 'wink'.
So: (a) if you use irony, you could use a ;-) to warn others and (b) if you think other members use harsh language, imagine they forgot to add a smiley at the end of the text.

Other expressions

hoo roo Australian for 'goodbye', from 'hooray kangaroo!'
LOL Laughing Out Loud

Help! Someone sent me a computer virus warning! What should I do?

Please do not send virus warnings to the lists! Most of the warnings are hoaxes. See, for instance:

The only viral aspect of these hoaxes is their plea to be reproduced. If you really think you have important virus information, please contact a List Manager.
 

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The Archives

The messages to the Masto lists are stored in archives. Members of the lists can browse them via these pages:

A password must be chosen, but the procedure is clearly indicated on those web pages. Just click on one of the archive names, or on 'search', and you'll be presented with further information.

Searching the Archives

List members can search the archives in two ways.

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Any Questions?

Send questions about the lists to the list managers:

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